This is the disease that I have. It is probably how the book “Sleeping Beauty” came about because that is pretty much what I do most days. It sounds grim when Dr. Dan Peterson stated “he has never had a patient that recovered from ME/CFS” and found that, “ME/CFS patients experienced greater functional severity than the studied patients with heart disease, virtually all types of cancer and all other chronic illnesses.” Click here to read the full article or an excerpt below.
The mysterious and complicated illness that has been called chronic fatigue syndrome has a new definition and a new name: systemic exertion intolerance disease, or SEID for short.
The name change is big news because many patients and experts in the field hate the name chronic fatigue syndrome; they feel that it trivializes the condition. Another name, myalgic encephalomyelitis, has been used in Canada, the United Kingdom and elsewhere, but it doesn’t accurately describe the illness, either.
- Profound fatigue lasting at least six months;
- Total exhaustion after even minor physical or mental exertion that patients sometimes describe as a “crash” and is known medically as post-exertional malaise;
- Unrefreshing sleep;
- Cognitive impairment (aka “brain fog”) or a worsening of symptoms upon standing.
This definition is much simpler than some previous ones for chronic fatigue syndrome and myalgic encephalomyelitis. And it doesn’t require doctors to run a bunch of expensive and time-consuming tests to rule out other causes for the patient’s symptoms before making the diagnosis.